MGA News Summer 2003

Chairman - Publications Sub-Committee

The Publications Sub-Committee is working on an Information pack consisting of six Volumes; these will draw together and update previous MGA leaflets and publications. I am pleased to be able to say that we have now completed Volume 1, ‘A Medical Guide for Patients with Myasthenia Gravis’. We have also produced a booklet ‘Facts about MG for Patients and Families’, designed to inform newly diagnosed patients and their families; and a recruiting leaflet ‘Volunteering to help the MGA’.

By the time that you read this, a copy of each should have gone out to all Branches and ROs. Further copies are available, free of charge from Keynes House, although a donation towards the cost of post and packing is always welcome. (These publications can also be downloaded from this website.)

The titles in the Information Pack series are:

• Volume 1 - A Medical Guide for Patients with Myasthenia Gravis: Medical Information on Myasthenia Gravis for those people who have been diagnosed with the condition.
• Volume 2 - A Medical Guide for Patients with LEMS or Congenital Myasthenia: Medical Information on LEMS and Congenital Myasthenia for those people who have been diagnosed with these conditions.
• Volume 3 - Additional Information for Myasthenic Patients: Information on complementary treatments.
• Volume 4 - General Information for Myasthenic Patients: Information of general assistance to people with myasthenia, including Driving and the DLA, the DSS, prescription charges, insurance and other helpful organisations and Charities.
• Volume 5 - Medical Information (Medical Professionals): Information for medical and allied professionals. Details of Myasthenia Gravis, LEMS and Congenital Myasthenia with a greater emphasis on the neurological effects and drug information.
• Volume 6 - Medical Articles: Extracts from medical articles published in the MGA Newsletters.

As each is volume published, details will appear in the MGA News and a copy will be sent to Branches. To help the office staff, please do not try to order a Volume before it has been published. You will be notified via MGA News.

I gratefully thank all our good friends who are helping to compile the medical volumes. These include our President, Professor John Newsom-Davis, Professor Nick Willcox, Dr Ian Hart, Dr David Hilton-Jones, Dr David Shlugman, Dr Ian Spreadbury and Dr Maria Farrugia. Many thanks also to all the back-room helpers at Keynes House and elsewhere.

Deciding what goes into the medical volumes is relatively straightforward, but what would you suggest should be in Volumes 3 and 4? If you have found a complementary treatment, a service or source of information useful, or have handy hints on living with MG, then please write to me care of Keynes House, giving full details and we will do our best to include it.

MGA NEWS Summer 2003

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