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MGA News |
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Spring 2004
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Information Helpful to Schools
Information that is helpful to schools looking after
children with myasthenia
Flexible arrangements that can be helpful
- Having a chair to sit on instead of having to get down and up from
the floor
- Having flexibility about starting times and attendance and not
getting hassle about being late or absent
- Being able to stay indoors during playtime (having the choice about
whether to go out)
- Having the choice about the level of participation in PE lessons, and
the opportunity to opt out
- Having the optimum time to eat dinner and being able to have a drink
with the meal
- Having extra time for completing written work, this being relevant
particularly during exams and assessments
- Not being made to stand in queues
- Explaining to the class, with the agreement of the pupil, what
Myasthenia is and how it might affect their class mate
Points of consideration for class teacher
- It may be difficult for the child to put their hand up. Is there
another way they can indicate an answer or ask for attention
- The pupil may need to put their head on the desk as they may be using
it for support
- The pupil may have difficulty reading aloud due to weakness in the
voice
- The pupils fine motor skills may deteriorate with weakness and help
with recording work may be required
The opportunity to communicate with school on a daily basis is
important so both home and school have a current understanding of the child's
level of weakness and level of need.
MGA NEWS Spring 2004
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